I wrote this back in August 2012 which was just around the time I was diagnosed with this horrible condition. Everything that I have written is still going on but as grown 10 fold, I’m now having to use a wheelchair and I’m starting to try and enjoy life. But this condition, Complex Regional Pain Syndrome, plays by its own rules, I’m remaining positive about things, I’m try to getting out and about. I’m trying to get into the fresh air by fishing or just going for a stroll in my wheelchair. I am trying but things are so difficult.
Things they tell me I can do I will try too, and the things I can do I will enjoy.
This is becoming a regular occurrence me sitting to the early hours of the morning in pain! Here is a back ground to my condition, last year after a second major operation on my right foot I was diagnosed with CRPS. This took a bit of getting my head round, CRPS is hard to explain……infact no, its hard for people to understand it who don’t have it, this condition that has no cure is very hard to deal with, I and others who suffer this like me are in pain 24/7 with doctors also finding it hard to provide sufferers with medication that would help. I take 157 tablets a week for less that 3% pain relief. I suffered not only with pain but in mood and how I have a different out look on things. I used to be quite a happy go lucky chap but this CRPS is beating me big time, the terrible thing about it is my mood swings are being taken out on the ones I love. I no longer socialise with friends and if I do go any where I need to use my two crutches (Bill n Ben)!
Imagine having a fire burning this feeling of burning is in your feet and you can’t do anything about it. Even having clothing on my feet is agony… This is life for me. This is not an “Oh look at me please feel pity for me” post, it is far from it. I am just trying to get people who don’t understand what me and others who suffer from Chronic Regional Pain Syndrome(CRPS) feel. I am suffering big time (this suffering also includes my loved ones around me who need to put up with me) from this. I try to tell myself it will get better but the when? When will this get better, this is a question that never seems to be answered. Probably because the answer to this question will never be know.
Thanks for reading this sorry if it’s a bit wonky but it’s 03:45 and I’ve had medication! Please leave some feed back you can find me on twitter too at @maccasixty7.