Good Morning Folks.
Again no sleep tonight although I am in bed and have been since around 11pm!!
This week I received an email from my manager at work, my manager was just checking asking how I was, asking for Jennifer. My manager has been a great support since my first operation in May 2011 and still is to this day. The reason I say this about her is I think its nice that a manager and work place have been like this with me after being off for such a long time. I don’t think it is a regular occurrence to be honest.
It’s hard dealing with this condition and support is needed greatly and I get support from all over the world. I am part of a few online forums, we all suffer this condition and we all support each other and know how we are feeling and what I am going through…. Now I point out here that I am not saying the good people who don’t suffer from it don’t know how I feel or my frustration. Support is essential in dealing g with this condition and it’s one thing I have from everyone it seems. And I get it in all different formats from lots of different people.
This week I discovered a CRPS* website so had a wee look about it was basic although a small arrival caught my eye “Sufferers of CRPS* wanted for research” I thought cool I will do that. So after reading it and seen there was no clinical research or that it was just an interview for 1 hour to explain of how this condition has developed and what medication I am on. What can I do or not do. And all that stuff… So yeah name is down and I’m glad to take part in these researches as these are key to one day hopefully finding a cure for this condition.
Well it’s 03:42 and very frosty. I can’t sleep. I’m writing this and listening to music, I never was one for having headphones in and listening to music all the time but recently I have found I love just listening to music as it passes time and takes my mind of looking at 4 walls all the time. Johnny Cash, Oasis, Biffy Clyro, Cold Play, The Verve, Christy Moore, Willie Nelson, Elvis and Ministry Of Sound. What a mix but that’s the kind of music I love and there is many more I could add to that list.
I bid you a farewell see you on another wee Blog.
*CRPS Chronic Regional Pain Syndrome.