Good Morning Folks,
I hope you are as well as can be expected, and those who have been struggling the last wee while I hope that you are getting stronger.
Sleep… What’s That?
To many chronic pain sufferers sleep is something that we all struggle with. Flare ups as, we call them, is when pain increases and stays like a burning fire for as long as it wants too, now these can stop us from sleeping for days. Can you imagine being so exhausted that simple tasks you cannot do? Being in pain that is worse than child birth? Yet we have no sleep for days and still we go on, fighting this pain. Now from my own personal experiences with no sleep and fighting pain, I can tell you it’s something I wouldn’t wish on my worse enemy.
The longest my body has kept me awake from fighting pain is 5 days, now just think about that for a moment. My pain is horrendous to deal with in any given day but in a flare up, its intensified by at least 1000% and you may think that I’m over exaggerating but I’m far from it. From hallucinations to crying uncontrollably from pain and pure exhaustion it’s not a nice thing to experience and not a great thing for family and friends to witness.
I am lucky that I have my close family who fully understand what I’m going through and also some friends. Most of them ask at least once every couple of days if I’ve had enough sleep. Luckily for myself the 5 days of no sleep has never been back and the longest I have been deprived of sleep recently is 3 days. Three days is still extreme and takes so much energy out my body due to trying to fight pain too.
When I finally get to sleep then I can sleep for hours and hours but this also has downfalls. When I sleep it means I miss out on time with my wife, time with friends and family, and time just enjoying the day. Even when I am missing my sleep and fighting pain I miss all of the above and any other sufferer will say the same. I try and have a sleep pattern but flare ups can happen when ever they want, we are at the mercy of this condition. Yes we get medication by the bucket load and you would think it would help but in most cases it doesn’t even take 5% of the pain away.
I’m writing after having no nights sleep, I have very bad pins and needles and I’m having spasms. I’m in bed dancing like Elvis with these spasms!! Now today I will stay in bed and try get some rest and sleep.
Cheers for reading, hope I never sent anyone to sleep…..
Complex Regional Pain Syndrome is an incurable debilitating condition.